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组建患者小组：将患者价值观与偏好整合融入指南制订过程的建议

高一城,  夏如玉,  柴倩云,  冯玉婷,  王雅琪,  罗慜婧,  费宇彤

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高一城, 夏如玉, 柴倩云, 冯玉婷, 王雅琪, 罗慜婧, 费宇彤. 组建患者小组：将患者价值观与偏好整合融入指南制订过程的建议[J]. 协和医学杂志. doi: 10.12290/xhyxzz.2022-0528
引用本文: 高一城, 夏如玉, 柴倩云, 冯玉婷, 王雅琪, 罗慜婧, 费宇彤. 组建患者小组：将患者价值观与偏好整合融入指南制订过程的建议[J]. 协和医学杂志. doi: 10.12290/xhyxzz.2022-0528
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GAO Yicheng, XIA Ruyu, CHAI Qianyun, FENG Yuting, WANG Yaqi, LUO Minjing, FEI Yutong. Organzing Patient Panel： Suggestions on Incorporating Patient's Values and Preferences into Guideline Development[J]. Medical Journal of Peking Union Medical College Hospital. doi: 10.12290/xhyxzz.2022-0528
Citation: GAO Yicheng, XIA Ruyu, CHAI Qianyun, FENG Yuting, WANG Yaqi, LUO Minjing, FEI Yutong. Organzing Patient Panel： Suggestions on Incorporating Patient's Values and Preferences into Guideline Development[J]. Medical Journal of Peking Union Medical College Hospital. doi: 10.12290/xhyxzz.2022-0528
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组建患者小组：将患者价值观与偏好整合融入指南制订过程的建议

doi: 10.12290/xhyxzz.2022-0528

  • 1 北京中医药大学 循证医学中心, 北京 100029;

  • 2 北京中医药大学 国际循证中医药研究院, 北京 100029;

  • 3 北京 GRADE 中心, 北京 100029

基金项目: 

新疆维吾尔自治区重点研发计划（ 2021B03006-4）

详细信息
    通讯作者:

    费宇彤， E-mail： yutong_fei@163.com

  • 中图分类号: R181.2

Organzing Patient Panel： Suggestions on Incorporating Patient's Values and Preferences into Guideline Development

  • 1 Centre for Evidence-Based Chinese Medicine, Beijing University of Chinese Medicine, Beijing 100029, China;

  • 2 Institute for Excellence in Evidence-Based Chinese Medicine, Beijing University of Chinese Medicine, Beijing 100029, China;

  • 3 Beijing GRADE Center, Beijing 100029, China

Funds: 

Key Research and Development Program of Xinjiang Uygur Autonomous Region（ 2021B03006-4）

    摘要
  • 摘要: 患者参与指南制订作为一个新兴的国际研究热点，国内外相关方法学研究存在较大差异。本文倡导组建患者小组，并围绕患者小组的工作方式、参与指南制订的患者代表来源及选择、参与环节、管理及支持等方面进行探讨，提出患者小组持续性、结构化与指南共识专家组进行患者价值观与偏好信息的双向交流模式等方法学优化建议，以期为国内患者参与指南制订提供参考。
    Abstract: As an emerging international research hotspot, the development of guidelines with patient participation has great differences in related methodological research at China and abroad. This paper advocates the establishment of patient panel, and discusses the working methods of patient panel, the source and selection of patient representatives, participation phases, management, and support, etc. Methodological optimization suggestions will be proposed, such as the sustainability of patients, structuring and two-way communication mode made by experts with common sense between patient’ s values and preferences, in order to provide a reference for the development of China patient participation guidelines.
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    • 参考文献(51)
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出版历程
  • 收稿日期:  2022-09-19
  • 修回日期:  2022-10-24
  • 网络出版日期:  2022-11-30

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