[1]
|
Staniszewska S, Brett J, Simera I, et al. GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research[J]. Res Involv Engagem, 2017, 3:13. |
[2]
|
British HIV Association.British HIV Association.Guideline Development Manual[EB/OL].( 2021-10) [2022-04- 18].https://www.bhiva.org/GuidelineDevelopmentManual. |
[3]
|
American Academy of Neurology.Clinical practice guideline process manual[EB/OL]. ( 2017-06-17)[2022-04-18]. https://www.aan.com/practice/what-areclinical-practice-guidelines. |
[4]
|
Légaré F, Boivin A, van der Weijden T, et al. Patient and public involvement in clinical practice guidelines: a knowledge synthesis of existing programs[J].Med Decis Making, 2011, 31: E45-E74. |
[5]
|
王明辉,张菁,曾宪涛,等.临床实践指南制订方法:患者的价值观和意愿[J]. 中国循证心血管医学杂志, 2018, 10:1153-1156, 1161. |
[6]
|
Sackett D, Straus S, Richardson W, et al. Evidence-based medicine: How to practice and teach EBM, 2nd Edition[M].Edinburgh: Churchill Livingstone, 2000. |
[7]
|
Strauss SE. Evidence-Based Medicine: how to practice and teach EBM[M].London: Churchill Livingstone, 2005. |
[8]
|
Institute of Medicine.Clinical Practice Guidelines We Can Trust[M].Washington DC: National Academies Press, 2011. |
[9]
|
Infectious Diseases Society of America.Handbook for Clinical Practice Guidelines Development[EB/OL].(2021-01-19)[2022-04- 18].https://www.idsociety.org/practice-guideline/clinical-practice-guidelinesdevelopment-training-and-resources/. |
[10]
|
National Society of Genetic Counselors.NSGC Evidence-Based Clinical Practice Guideline Development Manual[EB/OL].(2020-03-03)[2022-04- 18].https://www.nsgc.org/Policy-Research-and-Publications/Practice-Guidelines. |
[11]
|
Minds Manual Developing Committee. Minds Manual for Guideline Development 2020 ver.3.0[EB/OL].(2021-03-22)[2022-04- 18].https://minds.jcqhc.or.jp/s/developer_manual. |
[12]
|
National Institute for Health and Care Excellence.Developing NICE guidelines: the manual[EB/OL].(2022-01-18)[2022-04- 18].https://www.nice.org.uk/process/pmg20. |
[13]
|
Scottish Intercollegiate Guidelines Network.A guideline developer’s handbook[EB/OL].(2019-11)[2022-04-18].https://www.sign.ac.uk/what-wedo/methodology/sign-50-a-guideline-developers-handbook/. |
[14]
|
赵瑞,拜争刚,黄崇斐.质性研究系统评价在循证指南制定中的应用价值[J].中国循证医学杂志, 2016, 16:855-859. |
[15]
|
Bo Y, Fang Z, Zong Z, et al. Preferences for treatment of lobectomy in Chinese lung cancer patients: video-assisted thoracoscopic surgery or open thoracotomy? [J].Patient Prefer Adherence, 2014, 8: 1393-1397. |
[16]
|
Welsh P, Tiffin PA. Assessing adolescent preference in the treatment of firstepisode psychosis and psychosis risk[J]. Early Interv Psychia, 2013, 8: 281-285. |
[17]
|
Vu HT, Sayuk GS, Gupta N, et al. Patient preferences of a resect and discard paradigm[J]. Gastrointest Endosc, 2015, 82: 381-384. |
[18]
|
Tong BC, Wallace S, Hartwig MG, et al. Patient preferences in treatment choices for early-stage lung cancer[J]. Ann Thorac Surg, 2016, 102: 1837-1844. |
[19]
|
Rid A, Wesley R, Pavlick M, et al. Patients’ priorities for treatment decision making during periods of incapacity: quantitative survey[J]. Palliat Support Care, 2015, 13: 1165. |
[20]
|
Noble S, Matzdorff A, Maraveyas A, et al. Assessing patients' anticoagulation preferences for the treatment of cancer-associated thrombosis using conjoint methodology[J]. Haematologica, 2015, 100: 1486-1492. |
[21]
|
Thomson RG, Eccles MP, Steen IN, et al. A patient decision aid to support shared decision-making on anti-thrombotic treatment of patients with atrial fibrillation: randomised controlled trial[J].Qual Saf Health Care, 2007, 16:216-223. |
[22]
|
Zhang Y, Coello PA, Brożek J, et al. Using patient values and preferences to inform the importance of health outcomes in practice guideline development following the GRADE approach[J]. Health Qual Life Outcomes, 2017, 15:52. |
[23]
|
Selva A, Sanabria AJ, Pequeño S, et al. Incorporating patients' views in guideline development: a systematic review of guidance documents[J].J Clin Epidemiol, 2017, 88:102-112. |
[24]
|
Blackwood J, Armstrong MJ, Schaefer C, et al. How do guideline developers identify, incorporate and report patient preferences? An international crosssectional survey[J]. BMC Health Serv Res, 2020, 20:458. |
[25]
|
Kung J, Miller RR, Mackowiak PA.Failure of clinical practice guidelines tomeet institute of medicine standards:Two more decades of little , if any , progress[J].Arch Intern Med, 2012, 172:1628-1633. |
[26]
|
Bonardi A, Clifford CJ, Hadar N. Structured Approach Using the Systematic Review Data Repository(SRDR):Building the Evidence for Oral Health Interventions in the Population With Intellectual and Developmental Disability[J].Eval Rev, 2017, 41:111-129. |
[27]
|
Boivin A, Currie K, Fervers B, et al.Patient and public involvement in clinical guidelines:international experiences and future perspectives[J]. Qual Saf Health Care, 2010, 19:e22. |
[28]
|
American Society of Clinical Oncology.Methodology Manual[EB/OL].(2021-09- 09)[2022-04-18].https://old-prod.asco.org/practice-patients/guidelines/guidelinemethodology.. |
[29]
|
European Society of Human Reproduction and Embryology.Manual for ESHRE guideline development[EB/OL].(2019-11-16)[2022-04- 18].https://www.eshre.eu/Guidelines-and-Legal/Guidelines/Guidelinedevelopment-process. |
[30]
|
Nagler EV, Webster AC, Bolignano D, et al.European Renal Best Practice (ERBP) Guideline development methodology: towards the best possible guidelines[J].Nephrol Dial Transplant, 2014, 29:731-738. |
[31]
|
Mohd Mustapa MF, Exton LS, Bell HK, et al.Updated guidance for writing a British Association of Dermatologists clinical guideline: the adoption of the GRADE methodology 2016[J].Br J Dermatol, 2017, 176:44-51. |
[32]
|
The Kidney Health Australia-Caring for Australasians with Renal Impairment.KHA-CARI Guideline Development Manual[EB/OL].(2019-11- 16)[2022-04-18].https://www.cariguidelines.org/guideline-developers. |
[33]
|
Qaseem A, Forland F, Macbeth F, et al. Guidelines International Network: Toward International Standards for Clinical Practice Guidelines[J]. Ann Intern Med, 2012, 156:525-531. |
[34]
|
American College of Occupational and Environmental Medicine.Methodology for ACOEMʼs Occupational Medicine Practice Guidelines[EB/OL].[2022-04- 18].https://acoem.org/Practice-Resources/Practice-Guidelines-Center/GuidelinesMethodology. |
[35]
|
O'Neill J, Tabish H, Welch V, et al. Applying an equity lens to interventions: using PROGRESS ensures consideration of socially stratifying factors to illuminate inequities in health[J]. J Clin Epidemiol, 2014, 67: 56-64. |
[36]
|
de Wit M, Cooper C, Reginster JY. Practical guidance for patient-centred health research [J]. Lancet, 2019, 393: 1095-1096. |
[37]
|
解染,陈耀龙,陈昊,等.循证指南制定中患者价值观和偏好的研究方法[J].中国循证医学杂志, 2015, 15:586-591. |
[38]
|
New Zealand Guidelines Group.Handbook for the Preparation of Explicit Evidenced-Based Clinical Practice Guidelines[EB/OL].(2001-11)[2022-04- 18].https://www.health.govt.nz. |
[39]
|
National Clinical Effectiveness Committee. Guideline Developers manual[EB/OL].(2013-02)[2022-04-18].https://www.gov.ie/en/collection/74f29c-national-clinical-effectivenesscommittee. |
[40]
|
International Diabetes Federation.Guide for Guidelines:A guide for clinical guideline development[EB/OL].[2022-04-18].https://www.idf.org/elibrary/guidelines.html. |
[41]
|
National Health and Medical Research Council.A guide to the development,implementation and evaluation of clinical practice guidelines[EB/OL].(1998-11-16)[2022-04-18].https://www.nhmrc.gov.au/guidelines. |
[42]
|
Boivin A, Green J, van der Meulen J,et al.Why Consider Patients’ Preferences?A Discourse Analysis of Clinical Practice Guideline Developers [J].Med Care,2009,47:908-915. |
[43]
|
Lewis SZ, Diekemper R, Ornelas J, et al. Methodologies for the development of CHEST guidelines and expert panel reports[J].Chest, 2014, 146:182-192. |
[44]
|
FitzGerald JD , Dalbeth N, Mikuls T , et al. 2020 American College of Rheumatology Guideline for the Management of Gout[J].Arthritis Care Res (Hoboken), 2020,72:744-760. |
[45]
|
Chung SA, Gorelik M, Langford CA, et al. 2021 American College of Rheumatology/Vasculitis Foundation Guideline for the Management of Polyarteritis Nodosa[J].Arthritis Care Res (Hoboken), 2021, 73:1061-1070. |
[46]
|
Sammaritano LR, Bermas BL, Chakravarty EE, et al. 2020 American College of Rheumatology Guideline for the Management of Reproductive Health in Rheumatic and Musculoskeletal Diseases[J]. Arthritis Rheumatol, 2020, 72:529- 556. |
[47]
|
de Wit M, Cooper C, Tugwell P, et al. Practical guidance for engaging patients in health research, treatment guidelines and regulatory processes: results of an expert group meeting organized by the World Health Organization (WHO) and the European Society for Clinical and Economic Aspects of Osteoporosis , Osteoarthritis and Musculoskeletal Diseases (ESCEO)[J]. Aging Clin Exp Res, 2019, 31: 905-915. |
[48]
|
Roman BR, Feingold J. Patient-centered guideline development: best practices can improve the quality and impact of guidelines [J]. Otolaryngol Head Neck Surg, 2014, 151: 530-532. |
[49]
|
van de Bovenkamp HM, Trappenburg MJ. Reconsidering patient participation in guideline development [J].Health Care Anal, 2009, 17:198-216. |
[50]
|
Goodman SM , Miller AS , Turgunbaev M , et al. Clinical Practice Guidelines:Incorporating Input From a Patient Panel[J].Arthritis Care Res (Hoboken), 2017, 69:1125-1130. |
[51]
|
Moore A, Wu Y, Kwakkenbos L, et al. The patient engagement evaluation tool was valid for clinical practice guideline development[J]. J Clin Epidemiol, 2022, 143:61-72. |